Monday, December 7, 2009

Lows blows!

Bad past week and weekend with lows...

Have been struggling keeping my BG up in the last week. I don't know what or who to blaim it on (except for me I guess). Perhaps I keep miss counting my carbs, eat too many simple carbs or what.
One thing I know is that I am WAY more sensitive again to carbs (simple and complex) since I started exercising now back from France. Still haven't ridden my bike with this polar weather but have been consistent with the running my 7 miles every other days.
Exercise and cold weather might also be a reason for extra fast carbohydrate burning ratio. Not sure but will keep on working hard trying to stay above 70 and as usual stay bellow 170.

Tuesday, December 1, 2009

Juice #12

Juice injection is over. now all we are doing are checks, and blood draws. Today we did a mix tolerance meal with 200cc draw and placed the dexcom CGM on.

Friday, November 27, 2009

H1N1

BRI offered the H1N1 vaccine for free. Got it on Tuesday, November 24th 2009

Tuesday, October 27, 2009

Juice #11

Blood pressure 138/82
Heart rate 64
Weight 83.2lbs

Blood draw 20.5cc

Tuesday, October 20, 2009

Juice visit #10



Blood pressure 122/62
Heart Rate 60
Weight 84kg

Got the shot in right arm from Karen, didn't feel a thing.
Karen helped me put on my CGM.

Tuesday, October 13, 2009

Juice visit #9



Blood Pressure114/68
Heart Rate 64
83 kg
152 ml blood draw
Debbie told me to take my flew + H1N1 vaccine

Wednesday, October 7, 2009

Juice visit #8

Non fasting visit today at noon. No blood sample, no urine, not much of a medical, just vital signs and the shot. Dr. Bobcky (spelling) gave it to me. No pain. Stayed for the mandatory 1/2 hour and was on my way back to work by 12:45.

Monday, October 5, 2009

What is your A1c goal?


I think it is important to have an A1c goal. I probably have an OCD type mind and therefore always have to set my self a new goal, of course on the better side. I just got my last A1c and it is back down to 5.5%. My goal is 5.0% with little lows. I am back on the CGM, still on the pump with apidra and I am doing pretty good. The only lows are when I over treat or over correct, and the highs are when I eat too much! So all things that I can control really.
Testing many times in the day is key, as CGM are not (at least not my version) very accurate yet. But I make it work with what I've got.
Many people were telling me that my goals were crazy. But I am sticking to them, because I know that by continuing to shoot for a cycling season and athletic level as good/better as pre-diabetes (like my 2007 year) will get me my A1c of < 5.0%.

Set a goal and stick to it, with intelligence and safety you can do it.

Friday, October 2, 2009

Latest A1c

Asked for a new A1c draw. Got the result today: 5.5% YEAH! I am happy to be back down at my ultimate lowest. Will have to keep working hard in order to maintain that one now. Will start running again 3 times per week, the usual 6.8 miles.

Tuesday, September 29, 2009

Juice visit #7

No Fasting, noon visit today. Started with weigh (81.8kg), vital signs (blood pressure and temperature), Karen gave me the shot in the left arm (didn't feel a thing again, thanks Karen!), Laurie took 3 vials of blood in my right arm, and got my double 3 eggs omelet with tomatoes, onions, mushroom and swiss. Then Doctor David came to do a quick physical evaluation and I was on my way out the door.
No signs of any effect from the drug, treatment. I feel good, not as good as if I was training as I haven't been on the bike since last week. I am going to start to have jogging at lunch time, probably will start next week.

Wednesday, September 23, 2009

Juice visit #6

Fasting visit again today, 8am (got in late at 8:30am). Gina joined me, was nice. Took a little longer than usual. Ended up taking the entire day off.
They also performed the mixed meal test where they draw a base line blood work, make me take this special shake where they know exactly how much carbs and everything is in it, then take multiple blood draw at regular intervals which they then analyze to see what my blood glucose does. I then got some food and they injected me with the juice.

Deb, the diabetes educationist, also talked to me for a while about making sure I manage a little better my lows. So we changed some of my pump settings with my basal to keep it at 0.45u/hour between 1am and 12pm and back at 0.6u/hour from 12pm until 1am. Will see if that helps with some of the lows I get at around noon.

Exercise Works! Proof

Monday, before I finished working, I checked and was at 158 (which is high in my book). I decided to go on a low/medium intensity bike ride after work and therefore not treat with insulin.
I left on my bike at around 5:30pm, never took any correction and rode about 25 miles to Mercer island via Bellevue with some hills, one where I got my heart rate up at 180.
I did bring a powerbar as emergency fuel in case but never took it. Got to about mile 22 on my way back (down 520) and started to feel the low hit me. I checked my CGM which was still showing me at 100. I got home for dinner and checked at 58. Too low, and ate.

Conclusion, exercise works. No insulin/correction/bolus, just basal and medium exercise will help you keep a normal blood glucose.

So go out there, bring fuel with you, don't let the low happen, you know it's not safe, you know it's not good, fuel up and keep the levels in control. If I can do it, you can do it too.

Happy workout.

Tuesday, September 15, 2009

Juice visit #5

Fasting visit today, 8am, small blood draw, health related questions with 2 doctors, and blood glucose level checks with diabetes specialist. Shot, lunch provided, back at work at 10:20.

thank you to all the crew at BRI for their kindness and support in this research. Special thanks to Heather who is always smiling and pleasant when I see her ;-)

Mt. Baker hill climb race "Ride 542"

Sunday was the big day for us, the Woodinville Bike shop and another 700+ local and from out of state cyclists.
On the program, 25 miles of non stop climbing from Glacier WA which is located on route 542 to the top and dead end of the road at Artist Point totaling a 4400 ft of total elevation gain.
My personal best on this race was in 2007 when I completed it in 1 hour 44:36. I had set my goal to match that time, to prove that WITH diabetes I can achieve the same time than before I was diagnosed type 1.
Well I did not succeed. On Sunday I finished in 1 hour 57:09. About 1 minute behind my last year's performance then already with diabetes.
Why? what went wrong? Nothing, no real excuses. I believe that a better understanding of nutrition is going to be necessary to make sure my body is sufficiently nourished for efforts like these.
I also don't believe that the research I am participating has any effect on my riding.
So for next year, I will set my goal at 1 hour 40:00 and work more on eating well/enough with type1 to maximize my level of fitness.

Congratulations to all the guys from the shop who rode and for a wonderful stay in Glacier in our cabin.

Tuesday, September 8, 2009

Juice visit #4

Forth visit at the BRI for the BHT-3021-01 trial this week. Noon visit with NO fasting, no urine sample, just the juice shot.
Karen was as good as always with her pin point accuracy into my right arm. Laurie is looking very nice and healthy in her pregnancy. All is well.

I am staring...Oh sorry, and Heather was a no show...but who cares ;-)

I am starting to freak out about the race for Sunday the 13th, Baker race! We will head up there on Saturday, make some healthy food and get a good night's sleep with the gang. Mike has rented a cabin which I have recommended a while back. Hope it is as nice as the photos and reviews suggested.

This past week and weekend I really struggled with my levels...No exercise at all since Wednesday's night ride, still moving emotion and unpacking too much stuff into the new place (which I don't like much...). Eating out as I haven't had my kitchen all setup yet (that is done now). Pretty much feel un-healthy for the past few weeks, and I think my numbers are showing it.

So for good advice, training helps process carbs (and junk food) much better!). I really can tell the difference when I exercise a lot that my carb (and calorie) intake is processed more efficiently and my levels are easily controlled with even less insulin than normal. It is not a myth! exercise and eat well will give you a tight control.

Other than that, all is fine.

Wednesday, September 2, 2009

Juice visit #3

Third visit at the BRI (Benaroya Research Institute) for the Bayhill BHT-3021-01 trial this week. Fasting visit, urine sample, blood draw (very little quantity this time, 2 small syringe). Got the shot in my left arm and received food (ordered 2 three eggs omelets and a chef salad ).
Had the Diabetes specialist help me put on my CGM.
I have noticed some high in the past few days, I hope that I am not coming down with something, although I am going to blame it on stress with the move, school starting again for my son and life. Also haven't been able to do much exercise. Last rode the bike on Wednesday the 26th...Carelink reported average for the past 2 weeks is 99 (93 on CGM)
On Sunday the 30th I kept on going low while I was moving from Kirkland to Redmond. My average for that day was at 42! Maybe that's why I felt like crap...
Other than that, feeling fine.

Tuesday, August 25, 2009

Juice visit #2

Second visit for the Bayhill BHT-3021-01 trial.
Simple, they drew a smaller quantity of blood this time and checked my vitals. Then gave me the drug shot and fed me as I had to be fasting for today's blood samples.

My son Julien also participated in the "trialNet" study, which he can do once per year as a family member of a type 1 person. All they do is take a blood sample from him, and try to identify if something, any pattern may link my son's genetic predisposition to type 1...or not.
Julien had to sign for the first time. He gave me a fit for it as he didn't want to sign, wasn't comfortable doing it or didn't know how to do it. I told him to simply try with a big long J letter and put a D on its tail. He finally did after a few tears but was more interested and NO tears to get on with the blood draw...funny little guy...
I dropped him at day camp after that and went to work.
Feeling fine.

Monday, August 24, 2009

Baker training ride #2

Sunday, we decided to drive up to Mt. Baker and do one last drill from Glacier to the top before the official Baker race on Sept 13th (which is now open, last 2 miles was closed on our training ride #1 June 29th).
Gina was going to watch my son Julien somewhere up the mountain and join us all at the end.
Things started well for me at 6am (wake-up) with a BG at 83 (nice, my targets are 85-95) and a low reservoir alert all freaking night. Ate 104g of carbs for breakfast (eggs, 4 slices of chicken, tomatoes, 3 slices of whole bread with butter and nutella).
Gina, Julien and I took the road to Woodinville where we met up with the boys (and now girl...), arrived at Glacier at around 10am and started the competitive ride up Mt. Baker (24 miles, 4,800ft elevation gain). Checked my BG one last time at the start, I was at 109, my CGM (yeah I am back on it) was reading 94. Right off the bat you start to climb on the rollers when at about 6 miles into comes the one that always kicks my ass. It's about a 2 miles steep roll that brought my heart rate up to 178 which I guess I never recovered from (I usually have no problem recovering from that on our grueling Wednesday rides...). Mike was kind enough (as always) to wait for me and "coach" me on my breathing, and to also tell me to eat and drink more. I let him go at his pace so that he could catch the rest of the group up the road even though Chris was now nice enough to pace me back almost into the entire group. But knowing what was up ahead (12 miles of non stop 7% grade uphill, I let them jump up and decided to conserve whatever left over energy I had (or was lacking) to finish up at my own pace.
And what a crappy pace this was. I could not get my speed higher than 7.4 miles per hour for the most part and my heart rate higher than 155. Not sure why still but it was painful, and very lonely up the side of the mountain. For the first time since I have been riding up baker (about 8 times now?) I did not enjoy this moment.
I finished in pain and little air in my longs in about 2h05min, BG at 137, CGM at 98.
I opted to drive down with Gina and Julien in my car as I was very sad of my "performance" .
Overall on the ride I ate: 4 vanilla GU, about 10 sharkies, 1 and 1/2 bottle of 2 scups each accelerate sports drink, 1 Milky Way. A chocolate/peanut butter bar and banana before the ride.
Jana (Mike's mother) as always was very much motherly and prepared us all an egg salad on bread (no insulin for it). I checked my BG at 148 at 3:13pm and 126 at the "Beer Shrine" at 4:01 (remember no insulin) where we all decided to have a late lunch at 3pm or so. Good thing I didn't inject insulin at time of order because it took them a good 40 minutes to serve our big table.
Spend some time in Bellingham with my Chérie and Julien where I had a cold coffee with milk (I shot .4u for it which I found to be pretty devastating later in the evening).
Drove back home talking about politics with my honey and arrived at home where a Hypo hit me like a bus in the face, testing at 50! CGM reporting a safe 88 trending down (no arrows) to 80 at 8:36.
Decided to go eat something in a hurry! at a Thai place where I shot 4.1u for 92 guestimated gramms of carbs with a BG at now 52.
Went to bed at 66, took a muscle milk to test again before closing my eyes at 64 (do not try this at home) but I had my personal nurse laying next to me for the entire night as well as my CGM alarming me every 20 minutes of a low from 4:22am until 6:42am with the lowest at 47 at 5:22am.
I didn't do anything about them because I wasn't feeling it much. Finally tested when I woke up at 6:48 with a BG at 91 CGM still reporting 58. (trust your body...)
Anyways, I think what screwed me up with the TRUE low at 50 at around 8pm was the stupid non calculated bolus 0f 0.4u I took with the coffee (forgetting how strong they make them with very little milk) and of course still trending down since my body was still on the mountain burning about 2000 calorie.

Thursday, August 20, 2009

Letter to Senators and representatives

Diabetes has changed my life in many ways and here are a few examples why:

How many times do you use your hands and fingers in one day to bring something into your mouth. I bet you don't even realize. But please, after you have read this, try for just one day to count.

Now every time I bring something into my mouth, I need to check what my current blood glucose levels are, count or/and estimate what it is I am taking to my mouth contains, how much fat, how much protein, how much glucose. Because depending on all the other ingredients that make that food, the glucose will react differently in my, not to mention my mood, current health of the day, stress.

Every time, I ask myself, "is it worth the $1 test strip I need in order to test my current blood glucose", and if I do eat that, “is it worth the +$10 of insulin my +$6,000.00 insulin pump and over $400 of insulin pump supplies per months it costs me?”

I have been diagnosed with Type 1 Diabetes on Tuesday, May 6th 2008 at the age of 36.

Type 1 is a genetic disease even though since I have been diagnosed, I keep asking myself; "running 6 miles every other days at lunch time every week, riding 130+ miles per week on my road bike competitively, and eating healthy food with low fats, low cholesterol, low glycemic index and less salt wasn't enough?"

The answer is, I did not do ANYTHING wrong. In fact I did it all right, and have been doing it all right for the past 37 years now, but type 1 diabetes finally got the best of me and decided to tell my pancreas to stop working.

Think about it, feel bad for the millions of us who struggle each day, each time we bring something up to our mouth. Feel bad that the number 1 military power in the entire world can NOT provide a cost efficient way to its citizens to treat our decease, that I need to put the LEGO present for my son on hold in order to make sure I can pay for my diabetes supply my insurance doesn't pay for, some go bankrupt, lose their home, and so many can’t care because they can't purchase any of the supplies to survive.

Diabetes is a survival game, if you have ALL the tools available, you can live with it. If you are missing one tool, you will struggle with consequences and die sooner than later.

Tuesday, August 18, 2009

I got the "Juice"!

Well here we go, I am officially a guinea pig. On Tuesday August 18th, Benaroya Research Institute finally injected me with “The Juice” in my left shoulder muscle. I got yet another full medical exam, tones of questions. Had to go fasting because they draw quit a lot of blood this time and gave them a sample of my urine.
For the next 12 weeks, on every Tuesday, I will get another shot of the juice and they will keep testing me for the entire study. I will get another A1c out of this visit.
I also had an Endo appointment with Doctor DeSantis prior to the research meeting. He is such an awesome person, he listens to me and takes time. Understands my needs with cycling and exercise and support new things to try each time. He said I make him learn more about it than I learn from him. I like that coming from an educated person. I think I am doing something right!

Tuesday, July 14, 2009

Research participation



On Tuesday I was scheduled to go at the Benaroya research Institute for Diabetes at the Virginia Mason hospital in Seattle to participate in a regular blood draw they like to perform on me, but to also get screened for a new research I have agreed in participating which will involve me for more than a year of testing and trials by injecting a new "drug" once a week at the beginning.
This drug is being developed and tested on 72 humans worldwide (I would be the first subject in Seattle). It is the hope and believe that the drug would and can preserve the current insulin production of a type 1 diabetic like me rather than letting the auto immune system continue the destruction and eventually making the pancreas "dead" as far as insulin production is concerned.
This Tuesday was the 1st step in the screening phase, which involved a series of blood draws at regular intervals after they had given me a "special" glucose/protein shake to see the left over effectiveness of my pancreas. They also performed an ECG (or EKG) to make sure my heart would be able to handle the little bit of extra stress the study requires.
I am now waiting for the research director to schedule me in for an eye exam, when to start a 24 hours urine sample collection (not a very fun part of the screening as I have to carry around this 3 litter jar with me for whenever I need to go to the bathroom. I also have to keep it refrigerated and I hope my son won't mistake it for lemonade....). They will also set me up with the Dexcom continuous glucose monitor during the first 11 weeks of the trial and need to set that up on me.

More to come...

Saturday, July 11, 2009

Vashon Ride (solo)

Today I decided to get my lazy ass off the couch after watching the stage of the Tour de France and set myself the goal to ride at least 70 miles at tempo. I thought about riding in the direction of Alki beach in West Seattle via Bellevue and Mercer Island with the loop. http://www.bikemap.net/route/241269
I left the house with a blood glucose at 99 and kept the levels pretty good all along. Once I got the West Seattle, I decided to take a "left" where the road was going up rather than down where the road was going to Alki. I ended up at the Fauntleroy ferry terminal and got on the boat that was sitting their. Made it to Vashon island and took the scenic more hilly loop to the south of the island in order to take the ferry off to Point defiance in Tacoma where I met up with Gina and had a late lunch. Gina then recommended to drive me home, as a precaution since after cooling off for a while, my blood glucose levels tend to trend down FAST!
over all it was a very nice ride, not pushing too much, still got 3560 ft of elevation gain but only 54 miles.
Average blood glucose for the day with 14 readings: 108 with a high at 174 at the end of the day and a low at 55 right after the ride.